Watching, waiting.

Milo did a great job overnight after surgery. They have him heavily sedated and are using a paralytic to keep him comfortable to recover. They will keep him like this for 48 hours (probably Saturday) when they start to ween medications and see if he is ready to extubate.

His chest tube output has slowed and after the x-ray this morning we will see if we can remove that soon.

When they start to ween medications and he starts to wake up it will be tough. And I anticipate most of my time being spent bedside. So I took the opportunity yesterday to sneak away and spend some time with Charlie. This is hard on her, just like it is for everyone else. And my mom guilt is currently through the roof. I know my fellow medical moms understand. Regardless of logic the guilt is there no matter which child you are with. You’re heart just doesn’t feel whole when you can’t have your family together for medical reasons.

We all try to do our best and spread our attention but it never feels enough.

Milo did great and had an uneventful day. We were able to check in with our nurse throughout the day and after getting Charlie to bed I came back to the hospital for the night.

And let’s allllll give a great big welcome back to Nicu Milo who at 3:30am decided he wanted to see how many nurses he could get in his room in the shortest amount of time. He started to break through his sedatives and become agitated. His respiratory machine started to alarm followed by his monitors. He experienced a desat. His nurse moved quick and gave him a bolus of Roc and fentanyl and gave him some suction and after getting everyone in his room, started to calm down and everything came back up. It was a scary couple of minutes but he stabilized quickly.

His labs all looked good this morning labs all looked good. His x-ray showed his right lung is still slightly collapsed. They will do some positioning to help. Respiratory came by and made some tweaks and did some pounding on his chest and called it therapy. All in all we are still in the watch and wait stage until tomorrow morning. The next step is preparing to extubate.

Now I will sneak away again for a few hours to have some time with Charlie.

Thank you all for your love & support. We couldn’t do it with out you.